Latest News

Assistive Technologies

Steve Spohn — an expert in gaming with disabilities and assistive technologies, and editor-in-chief of AbleGamers.com — highlights a few technologies that make life easier, safer and more efficient for people with progressive muscle weakness. Some technologies currently exist; others are coming in the near future. A resource list offers links to the technologies described in the article; links are provided to videos of some technologies in action. Posted: 4/10/2013

Living Through Unexpected and Unwanted Life Transitions

Growing up and living with Duchenne muscular dystrophy has caused me to live through many transitions. Living through these transitions started by first understanding and realizing the significance of the disease. From my time of diagnosis until I was 8 or 9 years old, I don’t think I ever really realized the significance and seriousness of my disease. For example, early on, I always thought that only my legs were affected and not my arms. One day, I felt threatened by another boy at school.

It's Not in My Chart

Hospital stays aren't a piece of cake for anyone, but they can be especially taxing on individuals with neuromuscular disease who have complicated medical histories. The author, who is no stranger to frequent hospital stays each year, explains how she adopted a template — which covers everything about her life that isn't found in a typical medical chart — to help foster more personalized interactions with the medical staff. Posted: 4/8/2013

Cushion Comfort

Wheelchair cushions are the key to your comfort, and they can be a big help in preventing pressure sores, a serious concern for people with neuromuscular disease. To help you in your quest for the right cushion, the author explores a variety of wheelchair cushions ranging from foam and gel cushions to air, honeycomb and alternating pressure cushions. Posted: 4/6/2013

Speed Dating: How I Fell in Love with Myself

Sometimes I wonder if I am a masochist. Why else would I go speed dating? I mean, getting rejected by 14 guys in a row isn’t how most people would like to spend their Saturday night. Yet, I went back for more this week, and just received email confirmation that I was not chosen by any of the latest batch of guys, either. Strangely, I am at total peace with the outcome. After the first round of speed dating, I was admittedly bummed that no one wanted to get to know me further.