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Dazed and Confused

I left my doctor’s office dazed and confused this week. Usually this is a state easily explained by the fact that, being a surgeon, she likes to poke and prod my wound (nice, huh!). So to combat her assaults (and because I’m such a wimp), I usually load up on heavy narcotics (don’t worry, they’re prescribed). However, this week there was no poking. No prodding. No pain meds. Just words. After examining me, my surgeon said the words I’ve been waiting six months to hear: “Your wound is closed.

Athletics for All

The glory days of high school sports are no longer reserved for dream team athletes, as athletic directors are increasingly opening up sports to all students, regardless of ability, and seeing winning results on the field and off. Posted: 4/11/2013

Assistive Technologies

Steve Spohn — an expert in gaming with disabilities and assistive technologies, and editor-in-chief of AbleGamers.com — highlights a few technologies that make life easier, safer and more efficient for people with progressive muscle weakness. Some technologies currently exist; others are coming in the near future. A resource list offers links to the technologies described in the article; links are provided to videos of some technologies in action. Posted: 4/10/2013

Living Through Unexpected and Unwanted Life Transitions

Growing up and living with Duchenne muscular dystrophy has caused me to live through many transitions. Living through these transitions started by first understanding and realizing the significance of the disease. From my time of diagnosis until I was 8 or 9 years old, I don’t think I ever really realized the significance and seriousness of my disease. For example, early on, I always thought that only my legs were affected and not my arms. One day, I felt threatened by another boy at school.

It's Not in My Chart

Hospital stays aren't a piece of cake for anyone, but they can be especially taxing on individuals with neuromuscular disease who have complicated medical histories. The author, who is no stranger to frequent hospital stays each year, explains how she adopted a template — which covers everything about her life that isn't found in a typical medical chart — to help foster more personalized interactions with the medical staff. Posted: 4/8/2013

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