Latest News

It's Not in My Chart

Hospital stays aren't a piece of cake for anyone, but they can be especially taxing on individuals with neuromuscular disease who have complicated medical histories. The author, who is no stranger to frequent hospital stays each year, explains how she adopted a template — which covers everything about her life that isn't found in a typical medical chart — to help foster more personalized interactions with the medical staff. Posted: 4/8/2013

Cushion Comfort

Wheelchair cushions are the key to your comfort, and they can be a big help in preventing pressure sores, a serious concern for people with neuromuscular disease. To help you in your quest for the right cushion, the author explores a variety of wheelchair cushions ranging from foam and gel cushions to air, honeycomb and alternating pressure cushions. Posted: 4/6/2013

Speed Dating: How I Fell in Love with Myself

Sometimes I wonder if I am a masochist. Why else would I go speed dating? I mean, getting rejected by 14 guys in a row isn’t how most people would like to spend their Saturday night. Yet, I went back for more this week, and just received email confirmation that I was not chosen by any of the latest batch of guys, either. Strangely, I am at total peace with the outcome. After the first round of speed dating, I was admittedly bummed that no one wanted to get to know me further.

The Power of Building Relationships

MDA Senior Vice President of Advocacy Annie Kennedy recounts some of the most pivotal moments in the MDA community's legislative history, many of which have been spearheaded by MDA's legion of unsung heroes. Posted: 4/3/2013

Just Go … But Plan as Much as You Need To

Have you seen the horror stories about airlines damaging wheelchairs and people getting stuck in the airport in their wheelchairs and wheelchairs breaking while traveling and people getting sick while abroad or that cruise ship that ran out of power or those people who spent 10 hours stuck in a plane on the tarmac? Yes, me too. But what you don’t hear about are the thousands of successful trips that people take every day. The trips that go smoothly. The trips where everything falls into place just perfectly. The trips where wheelchairs make it off the plane just fine.