• Opportunity Costs

    Opportunity Costs

    “So be sure when you step, Step with care and great tact. And remember that life's A Great Balancing Act. And will you succeed? Yes! You will, indeed! (98 and ¾ percent guaranteed) Kid, you'll move mountains.”
  • The opportunity of a lifetime meeting others with Muscular Dystrophy

    The opportunity of a lifetime meeting others with Muscular Dystrophy

    When I first started sharing my story I had no idea where it might take me. My main objective was to simply raise awareness but I never realized what doors it might open. After all I felt all alone like I was the only one in the world living with Becker's Muscular Dystrophy. Then I started meeting others through social media connecting with other’s living with Muscular Dystrophy from around the world. Eventually this led to my very first opportunity of meeting someone face to face. It actually happened to be someone who lived only about an hour away.
  • Witness


    I have been seeing various posts in social media that make me feel as if we are arguing over who has the best perspective on the hate crimes of late. There are people saying that amidst the rejoicing of social changes, we need to acknowledge the other things that are still not right about the world. There are people saying that understanding the fact that there are many things that still need focus is not enough, we need to do more to impact change. There are people saying why are we posting about these issues now, they have existed for years.
  • Trusting the Journey

    Trusting the Journey

    I still can’t believe I ended up in New York. When my internship hunt began last fall I wanted to stay in the Boston area, where I am comfortable and where I feel safe. Boston is familiar; it is a constant. It is an anchor in my otherwise change-filled, stormy existence. As a result, I never seriously entertained the thought of moving to another city for a job, especially a city as large as New York. I have nothing against the Big Apple, however it takes a special person to thrive amidst the hustle and bustle. New York is not for the faint of heart – it is big and fast and uncompromising.
  • Suffering


    Someone asked me a really great question recently. She asked me if, when describing my MD, I ever told people I “suffered” from muscular dystrophy (MD). I’ve been asked a lot of things about my MD in my short time on earth and I’ve thought and analyzed many many different aspects of it. This was one thing I’d never been asked or really thought about before though. The short answer is no. I’ve never used that exact word when telling people about my MD. I usually just say I “have” muscular dystrophy. Then I began to think about the idea of suffering.