• Big Dreams and Assurance of Success

    Big Dreams and Assurance of Success

    I was recently asked how I deal with my disability and have such a positive attitude. For those of you who don’t know much about spinal muscular atrophy, this is a progressive disease. For some of us, the progressions come on quick and impact every aspect of life. For others, like myself, the progressions happen periodically, and the impact is dependent on mindset. What do I mean by mindset? It’s the vision, mission, fortitude, and resolve that determines everything. I’m an imaginative person and maybe even a little bit of a dreamer. I’ve often had big dreams.
  • Here we go again…

    Here we go again…

    I hear the familiar sound of the plastic hospital mattress. I am trying to get comfortable, but I can't. The cold snaps of the hospital gown are sending shivers down my arms while the knots are digging into my back. The pain in my chest is throbbing and aching. My heart feels like it is being squeezed tight, each beat struggling to contract. The nurse is fussing around me. The IV needle stings then burns as it slides in. It doesn't hurt as much as it used to, my veins are old pros. A nitroglycerin patch is stuck to my chest, and a blood pressure cuff wrapped around my arm.
  • Sex and the Wheelchair

    Sex and the Wheelchair

    ...her breathing was fast and heavy...She was becoming desperate as he teased her with his lips and tongue. She thought she would catch fire and disappear into utter ecstasy. He eased his hand under her bottom and lifted her quickly up and out of the rolling chair where she usually sat. He practically threw her onto the sofa, making quick work of her bra as he stretched out on top of her. There was urgency now in their every movement.
  • The Realities of Shopping

    The Realities of Shopping

    I’m not your typical woman in this area. I genuinely hate shopping. I’m a saver. When I do spend I buy a piece of technology, which I cannot buy often due to the cost. However, shopping is a reality even I have to face on occasion, especially when my clothes start falling apart. One way I have avoided shopping centers is by shopping online. There is great convenience to this, but there are moments we are all required to enter a shopping mall. Buying clothing that needs to be tried on is, frankly impossible alone or impossible if it is a pair of pants, even with assistance.
  • The Realities of Shopping

    The Realities of Shopping

    I’m not your typical woman in this area. I genuinely hate shopping. I’m a saver. When I do spend I buy a piece of technology, which I cannot buy often due to the cost. However, shopping is a reality even I have to face on occasion, especially when my clothes start falling apart. One way I have avoided shopping centers is by shopping online. There is great convenience to this, but there are moments we are all required to enter a shopping mall. Buying clothing that needs to be tried on is, frankly impossible alone or impossible if it is a pair of pants, even with assistance.