• Morning Light

    Morning Light

    This song is about how weakness is a state of mind and strength comes from within. I wrote this during one of the times I was frustrated as my body has been getting significantly weaker. The verses are metaphoric. I imagine being far from home (far from reality) and therefore in solace. However, I find it's not really an escape because I still dream of my atrophy (SMA). I blame society for their ignorance that impaired me from focusing on the good I see in myself.
  • Giving Muscle Disease the Boot

    Giving Muscle Disease the Boot

    In 2014, MDA and the IAFF are celebrating a 60-year partnership that has only grown stronger with age, a partnership that has produced a prolific fundraising endeavor called Fill the Boot. Today, IAFF is MDA's single-largest fundraising partner and most ardent crusader in the quest to find treatments and a cure for muscle disease. Posted: 4/16/2014
  • Understanding what it means for someone to live with Becker’s muscular dystrophy

    Understanding what it means for someone to live with Becker’s muscular dystrophy

    When it comes to living with a disability, I am sure I am not the only one who has to deal with people in our lives who refuse to take the time to learn even a little bit about the issues we face. I believe it is especially important for our family and friends to better understand what we might go through on a daily basis. This is one of the main reasons why I started sharing my story. Now it must be known that I am not looking for sympathy by sharing my story, just a little understanding.